Survey of US parents highlights need for more awareness about newborn screening, cystic fibrosis

A national survey led by Ann & Robert H. Lurie Children’s Hospital of Chicago found that parents have insufficient knowledge of newborn screening in general and of cystic fibrosis (CF) in particular. Researchers asked specific questions about CF based on studies showing that initial CF follow-up visits after a positive newborn screening often occur after 4 weeks of age, which is later than the recommended timeframe for best outcomes.

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